Well back from Little Rock with more concerns:
Test results
Polytypic plasmacytosis
8% plasma aspiration
5-10% core plasma cells
Atypical plasmacytosis
Aberrant immunophenotype cells 0.39%
Total plasma cells 0.56
Normal plasma cells 17%
Total analyzed 3,122,708
Aberrant cells postive for CD45(heterogenous), CD38, CD138, CD 56(bi-modal), CD20(heterogenous)
CD27 and CD81
Negative for CD19
Significant Hematologic abnormalites: Erthroid precursors manifest mild Megablastoid changes
Kapp/Lambda 2:1
IGG 1700
Good news the ratios k/l and l/k were back within ranges??? I asked many , many question. Dr. B was out so I had a sub. who was very informative and talked about 1/2 hour to me. He expressed a "down played" attitude. I am still stabile under his reading? The words above I saw for the first time
Aberrant immunophenotype cells 0.39
all the tests with CD ecterea.
Though cheered for about 1 hour I began reading the results more closely and am very concerned. The only good news to me is my ratios are back within range? Do not know why? I asked and Doc.
said that was a good thing. I wished I had not looked up Erthroid precursors mild Megablastoid changes. Internet says Myelodisplastic Syndrom is indicated! Which could mean Acute Myeloid Leukemia(that may be worse than MM) or Lymphomia. Uncle had Lymphomia, dad's brother.
Oh the joy of living with a shadow hanging over me....... Beatles reference, although slight.
The eternal footman standing in the corner holding my coat and snickering!
The second line references TS Eliot's poem, The lovesong of J. Alfred Prufrock. The next line reads,
"And in short, I was afraid."
Hi Keith! Thanks for sharing all your information - I like seeing other people's actual numbers. So good news the FLC ratios are normal? As far as your BMB goes... there is some information I don't understand, but it looks like you have 5-10% plasma cells in the core - will you qualify for the NKC trial?
ReplyDeleteI also like to compare other bloggers numbers....it gives me a reference point and educates me. I did not qualify for the clinical trial. I am actually glad, since it required a port and about 6 weeks of my time in Little Rock. It was great that my numbers for the ratios were back within ranges. They both had been out of whack for the last 6 months roughly. If you want you can research your CD38, CD138 etc. numbers online and the medical phrases from you reports online. Of course if you are like me you already have. I did not like what I saw, but yours are probably different from mine?
DeleteKeep us all posted with your blog and I will do the same.
Take care,
Keith
Trust me, I've googled the heck out of my biopsy reports! Yes, your reports look slightly different than mine... Also, it's probably "good" at this point you don't qualify for the trial! If you know I mean. :) I hope you are having a nice fall!
DeleteTake care,
Elizabeth